This is a work in progress. Please suggest books I might add!

Andrea Avery, Sonata: A Memoir of Pain and the Piano

Amy Berkowitz, Tender Points

Emma Bolden, The Tiger and the Cage

Keah Brown, The Pretty One: On Life, Pop Culture, Disability, and Other Reasons to Fall in Love with Me

Anatole Broyard, Intoxicated by My Illness and Other Writings on Life and Death

Eli Clare, Brilliant Imperfection: Grappling with Cure (and others)

Mary Felsteiner, Out of Joint: A Private and Public Story of Arthritis

Sinéad Gleeson, Constellations

Lucy Grealy, Autobiography of a Face

Susan Griffin, What Her Body Thought

Jessica Handler, Invisible Sisters

Judith Heumann, Being Heumann: An Unrepentant Memoir of a Disability Rights Activist

Shayda Kafai, Crip Kinship: The Disability Justice & Art Activism of Sins Invalid

Paul Kalanithi, When Breath Becomes Air (doctor, terminal cancer)

Stephen Kuusisto, Planet of the Blind

Thomas Larson, The Sanctuary of Illness (heart disease, genetic component)

Nadia LaSpina, Such a Pretty Girl: A Story of Struggle, Empowerment, and Disability Pride

Jane Lazarre, Wet Earth and Dreams: A Narrative of Grief and Recovery (breast cancer)

Joselin Linder, The Family Gene (rare genetic disease)

Ulla-Carin Lindquist, Rowing Without Oars

Audre Lorde, The Cancer Journals

Nancy Mairs, Waist-High in the World: A Life Among the Non-Disabled

Sarah Manguso, The Two Kinds of Decay

Harriet McBryde Johnson, Too Late to Die Young

Abby Norman, Ask Me About My Uterus: A Quest to Make Doctors Believe in Women's Pain

Leah Lakshmi Piepzna-Samarasinha, Dirty River: A Queer Femme of Color Dreaming Her Way Home

Leah Lakshmi Piepzna-Samarasinha. Care Work: Dreaming Disability Justice.

Porochista Khakpour, Sick (about addiction and Lyme)

Lucia Perillo. I've Heard the Vultures Singing: Field Notes on Poetry, Illness, and Nature. 

Emily Rapp, Poster Child and The Still Point of the Turning World

Lisa Roney, Sweet Invisible Body

Bonnie J. Rough, Carrier (intergenerational health issues)

Elizabeth Scarboro, My Foreign Cities (cystic fibrosis)

Sami Schalk, Black Disability Politics

Peggy Shumaker, Just Breathe Normally

Floyd Skloot, In the Shadow of Memory

Jeneva Burroughs Stone, Monster

Esmé Weijun Wang, The Collected Schizophrenias. Essays on living with mental illness.

Alice Wong, Year of the Tiger: An Activist’s Life

Alice Wong, ed., Resistance and Hope: Essays by Disable People

Black Disabled Women Syllabus by Ramp Your Voice

Memoirs by Healthcare Providers

Charles Barber, Songs from the Black Chair: A Memoir of Mental Interiors

Atul Gawande, Being Mortal; Better: A Surgeon's Notes on Performance; Complications: A Surgeon's Notes on an Imperfect Science

Barbara Lipska, The Neuroscientist Who Lost Her Mind

Henry Marsh, Do No Harm: Stories of Life, Death, and Brain Surgery

Perri Klass, Treatment Kind and Fair: Letters to a Young Doctor

Journals

Bellevue Literary Review: A Journal of Humanity and Human ExperienceBreath and Shadow: A Journal of Disability Culture and LiteratureDeaf Poets Society: An Online Journal of Disability Literature and ArtHospital Drive: The Literature and Humanities Review of the UVA School of MedicineIntima: A Journal of Narrative MedicineKaleidoscope (first magazine to explore disability through lens of literature and art, founded 1979)Rogue Agent Journal: A Journal for Work that Inhabits the BodyWordgathering: A Journal of Disability Poetry and Literature

Resources

Accountability Reporting on Disability, Race and Police Violence: A Community Response

Crip Lit: Toward an Intersectional Crip SyllabusDisability Language Style Guide from National Center on Disability and Journalism

Disabilities Literature Consortium

Disability Visibility Project

Harriet Tubman Collective

Literature, Medicine, Medical Humanities: An MLA commons site

LitMed: Literature Arts Medicine Database (NYU)Literature & Medicine (training for healthcare providers)

Sins InvalidCurriculum

Accessible Conference Guidelines from WC3

Essays (there are so many great ones--here are a few I've encountered recently!)

Sara Greenslit, "Start Anywhere," Bending GenreHeather Kirn Lanier, pretty much anything she writes, on parenting a child with special needs

Esmé Weijun Wang, Jillian Weise, and Keah Brown in conversation with Alex Lu: "What Does it Mean to Be a Disabled Writer?" Electric Lit, May 8, 2018.

Rachel Hoge, "The Careful Craft of the Disability Essay," Brevity, Jan. 24, 2018