Healthcare, it seems, is going to be a life-long topic for my writing and activism. And this past year and a half of our collective COVID-19 nightmare has been no exception. I came down with COVID-19 at the very beginning of the pandemic in March 2020, and then, like many, I found myself trapped on … Continue reading Boosters for Long-Haul COVID?
The happy thing for me this month is that I am celebrating the release of my essay collection, Pain Woman Takes Your Keys and Other Essays from a Nervous System. University of Nebraska Press continues to be a fantastic home for books, and I'm so glad to get to work with them. And I am … Continue reading Reaching other Pain People
I get it. We have all just lost a guiding artistic light, and it might have something to do with a suspected overdose. Now we want to fix the problem, so "ban opioids" are starting to appear in my social media feeds. We can't bring anyone back, but we can figure out the root of … Continue reading My pills
I learned about the Quell device earlier this week through social media. It isn't cheap at $250 but after I dove deeply into the online user comments, I decided I had to buy it. Why? Well, as you may have reason to know or not, when you're in pain, you want to fix that pain. … Continue reading Quell for Pain Management
You might see someone limping with a cane down the halls, and then a few days later they're fine. Or you know a co-worker has lupus and you are not sure what that means for their role in your project. Or you are just empathetic but unsure. I am not an authority on invisible disabilities, … Continue reading How Should You Treat a Co-Worker with a Chronic Health Issue?
I have a completely serious proposal that could do good for people and make someone some money (….and that might be the most American thing I’ve ever written). Here’s my vision: facilities modeled on health clubs that are specifically targeted to people (including but not limited to the elderly) with chronic pain, mobility, and mental … Continue reading Investors, I Have a Serious Awesome Idea
When chronic pain people go to see doctors and specialists, we are often asked to rate our pain on a 1-10 scale. Somehow I always get confused by this instrument, partly because I don’t know what each level means. For that reason, I’d like to propose this alternate 1-20 scale (it was 1-18 but I added … Continue reading Alternative Pain Scale
I'm working on a project about the experience of chronic pain, and I'm aiming for it to be not literary but still thoughtful and mutual-helpy, a kind of daily reader for chronic pain folks. I'll be posting excerpts here occasionally to help demonstrate an interest as I shop a proposal around. The standard world, the … Continue reading On Pain as “My Normal”
I have to give up coffee, either temporarily or permanently, I don't know which--it's an autoimmune thing. But really--it's ok. No need to fix it or Match.com fix-me-up with Yerba Mate/green tea/herbal supplements. This is a kind of elegy, and I'm just going through old photographs, remembering the hot kisses from the one who pushed … Continue reading Coffees I Have Loved
A fever, lying on the couch under the green blanket, feeling sorry for myself but more than that sorry for my kid, for his life that in this feverish insane moment looks like neglect. He just got home from school and he's playing video games and he just had an argument with the neighborhood kid … Continue reading Autoimmune Parenting