Boosters for Long-Haul COVID?

Healthcare, it seems, is going to be a life-long topic for my writing and activism. And this past year and a half of our collective COVID-19 nightmare has been no exception. I came down with COVID-19 at the very beginning of the pandemic in March 2020, and then, like many, I found myself trapped on … Continue reading Boosters for Long-Haul COVID?

Against Advice

The United States--and in particular its white Protestant-Work-Ethic subculture--is a fix-it culture. We like shows about remodeling houses and makeovers. We DIY and we read advice books and advice columns. We are helpers, which is great, and we are resourceful. But we also often give advice when love or support is more warranted, and we … Continue reading Against Advice

What does it mean when CHIP funding stops?

One of many, many egregious things going on right now is the Congressional refusal to fund the CHIP program, which provides healthcare for low-income kids. As I have written about here and elsewhere, I have a personal connection to this issue, as my son and I were on the CHIP-funded state healthcare program in Ohio … Continue reading What does it mean when CHIP funding stops?

Health “Benefits” and Violence

A long looonnng long time ago in a galaxy far far faaaar away, I was elected to serve on a committee at a workplace that discussed employee compensation and benefits. I deferred for a year because I didn't think my health could withstand it. Then I said to myself, Ok, everyone should put in their time, so … Continue reading Health “Benefits” and Violence

How Should You Treat a Co-Worker with a Chronic Health Issue?

You might see someone limping with a cane down the halls, and then a few days later they're fine. Or you know a co-worker has lupus and you are not sure what that means for their role in your project. Or you are just empathetic but unsure. I am not an authority on invisible disabilities, … Continue reading How Should You Treat a Co-Worker with a Chronic Health Issue?

Investors, I Have a Serious Awesome Idea

I have a completely serious proposal that could do good for people and make someone some money (….and that might be the most American thing I’ve ever written). Here’s my vision: facilities modeled on health clubs that are specifically targeted to people (including but not limited to the elderly) with chronic pain, mobility, and mental … Continue reading Investors, I Have a Serious Awesome Idea

Alternative Pain Scale

When chronic pain people go to see doctors and specialists, we are often asked to rate our pain on a 1-10 scale. Somehow I always get confused by this instrument, partly because I don’t know what each level means. For that reason, I’d like to propose this alternate 1-20 scale (it was 1-18 but I added … Continue reading Alternative Pain Scale

On Pain as “My Normal”

I'm working on a project about the experience of chronic pain, and I'm aiming for it to be not literary but still thoughtful and mutual-helpy, a kind of daily reader for chronic pain folks. I'll be posting excerpts here occasionally to help demonstrate an interest as I shop a proposal around. The standard world, the … Continue reading On Pain as “My Normal”